An Investigation of the Impact of Parental Involvement in Pediatric Palliative Care in Kano State
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Background of the Study
Pediatric palliative care focuses on improving the quality of life for children with life-limiting or serious illnesses. In Kano State, as in many parts of Nigeria, palliative care is still an evolving field, with parents playing a central role in the management of their child's condition. Parental involvement in pediatric palliative care is critical to providing emotional support, ensuring adherence to treatment regimens, and improving the child’s comfort during their illness (Okafor et al., 2024). The active participation of parents in care decisions and daily management can significantly impact the quality of care and patient outcomes.
Despite the importance of parental involvement, there is limited research on its actual impact in the context of pediatric palliative care in Kano State. This study aims to investigate how parental involvement affects the quality of pediatric palliative care and explore ways to enhance collaboration between healthcare providers and families.
Statement of the Problem
In Kano State, pediatric palliative care is still developing, and there is little information on how parental involvement influences the effectiveness of care. Parents, often the primary caregivers, may face challenges in understanding and participating in palliative care decisions due to cultural beliefs, lack of education, and limited access to healthcare services. This study aims to investigate how these challenges affect the quality of pediatric palliative care and identify strategies to improve parental involvement.
Objectives of the Study
- To assess the impact of parental involvement on the quality of pediatric palliative care in Kano State.
- To identify the barriers parents face in becoming actively involved in pediatric palliative care.
- To recommend strategies to enhance parental involvement in pediatric palliative care in Kano State.
Research Questions
- What is the impact of parental involvement on the quality of pediatric palliative care in Kano State?
- What barriers prevent parents from being fully involved in pediatric palliative care in Kano State?
- How can parental involvement in pediatric palliative care be improved in Kano State?
Research Hypotheses
- Parental involvement in pediatric palliative care improves the quality of care for children with life-limiting conditions in Kano State.
- Barriers such as lack of knowledge, cultural beliefs, and limited healthcare access hinder parental involvement in pediatric palliative care.
- Enhancing parental involvement in pediatric palliative care will improve both child and family outcomes in Kano State.
Scope and Limitations of the Study
The study will focus on parents of children receiving palliative care in Kano State. Data will be collected through surveys, interviews, and healthcare provider assessments. Limitations include potential biases in self-reported data and the challenge of recruiting participants from rural areas.
Definitions of Terms
- Pediatric Palliative Care: A specialized medical care for children with serious illnesses, focusing on providing relief from symptoms, pain, and stress.
- Parental Involvement: The active participation of parents in decision-making, caregiving, and emotional support in pediatric palliative care.
- Quality of Care: The standard of care provided to pediatric patients, including the effectiveness of symptom management and family satisfaction.
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